Category Archive: Autism

Oct 18 2017

Bomb Appetit!

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Tell Your Friends40     As you may have heard, Jake hit 400 subscribers on his YouTube channel the other day.  Needless to say, he was thrilled!  Thank you for all of you who helped.   For those few readers I have that aren’t friends on the book of faces, here’s the video we made where I tried …

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Oct 08 2017

Sunday Shorts #3

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Tell Your Friends11     Fit As A Fiddle Jake saw the doctor this week for a sports physical.  Status: healthy as a fifteen year old horse!  He’s ready.  He handled everything really well, with few exceptions.  He’s never been able to work an eye chart.  I forgot about this until I saw the medical assistant try and …

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Oct 05 2017

Infantilizing Jacob

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Tell Your Friends18     I saw this topic discussed on Twitter the other day and it got me thinking.  Do I infantilize Jake?  Do I infantilize others like Jake? To some extent, yes, I think so.  And I also think it’s wrong. Infantilization is when you treat someone who isn’t a child the way you would treat …

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Oct 03 2017

Is It Always Going To Be This Hard?

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Tell Your Friends      As I lay there in Jake’s bed, stroking his hair as he sobbed into my chest, I asked him, “It’s hard, huh?”  Stupid question, I realize, but I was trying to reach out.  The way he inhaled and let out a “yeah” with his exhalation broke my heart.  Jake’s going through a couple …

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Sep 19 2017

Smell My Teeth

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Tell Your Friends      A brief three weeks into school, and Jake has settled into a rhythm.  His externship at Katahdin Kritters is going very well.  At first, the thought of tending to so many dogs was a real turn off because, spoiler alert – they poop and it smells.  He’s adapted quickly.  Yesterday he told me …

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Sep 17 2017

Jake Has The Final Word

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Tell Your Friends      I blog “about” Jake; not necessarily “with” Jake, so naturally I had a lump in my throat when he busted me blogging about him this afternoon.   I was on picmonkey.com adding text to the featured image from my last post, Should Jacob Play Basketball?  Jake came by and saw the image as …

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Sep 17 2017

Should Jake Play Basketball?

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Tell Your Friends      I’m really struggling with this one, and since I have a place to put my thoughts down, let’s go.  The gap is closing between what Jake can do and what his peers can do.  Simultaneously, it’s getting bigger by the minute.   Jake wants to play basketball.  We had started some talk about …

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Sep 12 2017

Jake’s Drinking Problem?

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Tell Your Friends      In Neurotribes: The Legacy of Autism and the Future of Neurodiversity, I found a wonderful definition of echolalia; “the term of art for the way autistic people sample the speech they hear around them and repurpose it for their own use.”  The book, as an aside, was amazing.  It opened my eyes to …

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Sep 06 2017

Success!

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Tell Your Friends      Monday, we discussed the starting of Jake’s Sophomore year at school.  His big concern, in fact his only concern, was about Outdoor PE.  He hated the idea of having gym class outside, especially on wet or cold days.  He had asked us if he could change it, and we told him if he …

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Sep 04 2017

Jake’s Sophomore Year

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Tell Your Friends      Things can and must change.  This is the nature of things.  Also the nature of boys.  Jake is a newly minted Sophomore this year, and he’s already off and running.  The school has a new principal, and Jake has been talking about how much he wants to “respect Mr. Ring” for weeks.  He …

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May 05 2017

Everyone Loves A Bad Boy

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Tell Your Friends      He’s back!  Jake’s two week ban from posting on YouTube has ended!  His first order of business?  Post the video I made in iMovie of his Special Olympics adventures.  I never did get a response from the “appeal form” I submitted requesting some level of intervention. I wanted to keep the two weeks for lesson-learning …

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May 03 2017

Special Olympics: Penobscot Track and Field

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Tell Your Friends      Today was, I suspect, the first of many Special Olympic appearances for Jake.  This path started for him back in August of ’16 when he watched with wide eyes the athletes of the world compete in Rio.  He asked his mother if he, too, could do that.  As we looked at each other …

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